Our Life in H.D - Family of 3

This blog tells the story of a family of 3 living with Huntington's Disease. It will be of interest to those also affected by Huntington's Disease who are trying to make every single day count.

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Sunday, February 27, 2022

Thinking back to 2021...

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  2021.. 2021 was a train wreck of a year within our household.   January through to March saw skeleton staffing within my nursing team wh...
Saturday, February 26, 2022

The Lonely Road

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                                                    Being broken by an event involves you picking up the pieces and putting yourself back to...
Sunday, January 16, 2022

The New Normal

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 This was written in October 2021 - only just got around to publishing it.       Recent events since Covid have left me somewhat ‘frazzled...
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Sunday, July 19, 2020

Covid19, HD and Me

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      Like COVID19, the fears and anxieties we face having a loved one with HD are unprecedented. The daily fear of slowly watching and los...
1 comment:
Sunday, January 26, 2020

The Missing

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           They say the worst part of HD is watching your loved one deteriorate physically, uncontrollable chorea, poor coordination,...
3 comments:
Sunday, December 22, 2019

The Wave Clinical Trial: 3 doses in a row

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      So my last post left you on such a high note: my hubby’s first dose (the test dose) was a massive hit, as if our lives were enviably ...
Sunday, October 6, 2019

The Wave Clinical Trial - The Beginning

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     So when you’re in, you’re in, and being in requires a lot of paperwork and another diary in our ever manic household to sync and run! ...
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Our Life in HD
My lovely husband has been diagnosed with HD. I am here to tell the story of how we are as a family living life in HD, how it's affecting us daily.
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